11-year old Oliver from Chester was standing proud yesterday when his new Innowalk equipment was delivered, thanks to a major contribution from Steve Morgan Foundation’s Enable fund.
Oliver has Cerebral Palsy and 4-limb dystonia, which means he has very limited mobility and little movement in his wrists. He cannot sit unaided or weight bear through his lower limbs. The wheelchair that he was using restricted his independence and was not helpful to his condition.
Oliver’s physiotherapist had recommended an Innowalk, which would help him maintain an upright position and develop his mobility and independence. Being at eye level with his peers would enable him to have eye contact, boosting his social interaction and wellbeing.
The Innowalk is manufactured and imported from Norway and is not available on the NHS. Oliver’s parents, family and friends started on an impressive fund raising campaign to cover the cost of the equipment. They were devastated when, having reached the required target of £11,000, the assessors for the equipment informed them that Oliver had grown so much that he would need a larger scale Innowalk which cost nearly double the original amount.
Fortunately Oliver’s mum, Sandra, heard about the Steve Morgan Foundation Enable fund and contacted us. Trustees were so impressed with their determined efforts to get the equipment for Oliver that they agreed to cover the balance with a grant of £10,464. Whilst at the time the family was devastated, the good news is that this larger scale Innowalk will see Oliver through his teens and into adulthood. Sandra tells us, “we are over the moon!”.
To date Steve Morgan Foundation has funded over 500 children and young people with disabilities for specialist equipment. Funding is open to people of all ages in our remit who have a disability and where essential equipment is not available on the NHS or there is a financial shortfall.