Living Life To The Full

A young girl from North Wales who suffers from several severe medical conditions is able to enjoy more family activities thanks to an Enable grant from the Steve Morgan Foundation.

Amelie, who lives with her parents and two siblings in Ffynnongroyw, has a primary diagnosis of Quadriplegia Cerebral Palsy, which also leads to epilepsy, gastroesophageal reflux, feeding and sleeping difficulties and some hearing loss.

An Enable grant of £1,600 has been awarded towards the cost of a Kanga All Terrain Buggy, with bike attachment, which has made a hugely positive difference to the lives of Amelie and her family.

“Amelie has regular epilepsy seizures, often more than once a week, and the family are trying to make sure they do as much as they can as a family and live life to the full,” said Lindsey De Bartolo, Enable Funding Officer with the Steve Morgan Foundation, which also awarded Amelie a Grip Pad Eye Communication Aid two years ago.

“The rest of the family would go out cycling, but Amelie would have to stay at home as they did not have a safe way to include her.

“The Kangoo Buggy has made it possible for Amelie to not only enjoy cycling trips with her family, but also off-road outings, including beach and snow days.

“Joining her family in this way has helped Amelie socially and emotionally and she also benefits from the sensory experience of these activities.”

The Elifar Foundation, a small charity which helps to improve the lives of children and young people with severe learning difficulty and associated physical disability, has also made a donation of £1,600 towards the Buggy.

Amelie’s mother, Victoria, added:  “This grant has enabled us to be a family again whenever we go out.

“Amelie no longer cries in her pram but is happy to sit in it whether for walks or bike rides.

“She is so comfortable and we think it has had a good impact on her hip problem as well.

“We just want to say thank you, as we could not have done this alone.”

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