Calendar to offer Glimmer of Hope

A charity that supports families in North Wales affected by rare diseases is looking to raise awareness of their work through a unique calendar.

The Same but Different charity was awarded a three-year grant of £74,000 by the Steve Morgan Foundation in 2019 to fund the post of a Rare Navigator – a family support worker who assists families across North Wales who have a child with a rare disease.

Their latest initiative is called ‘A Glimmer of Hope’ and is a photography competition to visually express the hope that exists for people affected by a rare disease.

The image has to be about hope and could be a memorable place, activity or special time.

Project manager Gill Rock said the calendar will showcase the people behind their conditions. 

“Glimmer of Hope is an opportunity to visually express the hope that exists for people with rare diseases,” she said. 

“Winning entries will be used to create a calendar that will raise awareness of rare diseases and the strength that is shared within our community. The calendar will also feature specific rare disease days weaved into the year.”

The competition is open to anyone except professional photographers and it’s expected calendars will be available to purchase from October.

A panel of judges will decide the 13 winners, which will be made up of 12 monthly winners and an overall winner that will be used for the front cover. The winner will also receive a brand new Polaroid Snap digital camera.

Details of how to enter can be found here

Ceridwen Hughes from Mold founded Same but Different in 2015 to use the arts to highlight the person behind disability. 

Speaking last year to the Steve Morgan Foundation she said: “As a parent of a child affected by rare disease, I understand the isolation that many families feel on getting a diagnosis for their child or relative.  

“Only 50 per cent of rare diseases have a support group and we will ensure we are there for people no matter what their condition.  

“We will also work with support organisations to help them by being a local contact in North Wales. 

“This service is possible through the wonderful support of the Steve Morgan Foundation to whom we are very grateful.”

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